Orphanet database

Published by IRDiRC

Database Database or Tool Orphanet Orphan Drug Rare Disease Research and Drug Development

Orphanet is a unique public resource worldwide, gathering and improving knowledge on all rare diseases (RD), affecting less than 1 in 2’000 people in the European population.

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The Innovation Management Toolbox was originally developed through funding from the EJP RD project, which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575. The continued development and maintenance of the Toolbox are now supported by the ERDERA partnership, funded under the European Union’s Horizon Europe Research & Innovation programme, grant agreement No. 101156595.

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Orphanet database