CHICO

Clinical Research Crowdfunding Industrial Development or SME Preclinical Research Private Public

C.H.I.CO. Cluster of Health Innovation and Community, Cluster of regione Lazio in Italy, Private organization to help Life Science Actors

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Tool 1: The Importance of Public Private Partnerships in Rare Diseas

Published by

European Reference Network Industry collaboration Private Public Rare Disease Research and Drug Development

This resource explains the importance of public-private partnerships or collaborations for the rare disease community, in the light of the needs of the rare disease field and the current climate around research and innovation

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Data Sharing Play book

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Data managment; FAIR IHI Industry collaboration Private Public

The Playbook provides a practical, user-friendly guide to navigating the complexities of data sharing in IMI/IHI collaborative health research projects, outlining key concepts, roles, decision points, common challenges, and strategies to address legal, technical, and organisational obstacles. It encourages early planning, stakeholder engagement, and adoption of standardised best practices to accelerate data sharing and improve research efficiency across multi-partner consortia

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The Innovation Management Toolbox was originally developed through funding from the EJP RD project, which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575. The continued development and maintenance of the Toolbox are now supported by the ERDERA partnership, funded under the European Union’s Horizon Europe Research & Innovation programme, grant agreement No. 101156595.

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CHICO

Tool 1: The Importance of Public Private Partnerships in Rare Diseas

Data Sharing Play book