Tool 1: The Importance of Public Private Partnerships in Rare Diseas

Published by

European Reference Network Industry collaboration Private Public Rare Disease Research and Drug Development

This resource explains the importance of public-private partnerships or collaborations for the rare disease community, in the light of the needs of the rare disease field and the current climate around research and innovation

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Private funding

Published by IRDiRC

Award Crowdfunding Foundations or Donations Loan Private Rare Disease Venture Capital or Angel Invesment

List of different kinds of private funding available for orphan drug development.

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Crowd funding

Published by IRDiRC

Crowdfunding Private Rare Disease

Multiple websites/platforms provide crowd funding services or describes how to initiate crowdfunding for rare diseases

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The Innovation Management Toolbox was originally developed through funding from the EJP RD project, which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575. The continued development and maintenance of the Toolbox are now supported by the ERDERA partnership, funded under the European Union’s Horizon Europe Research & Innovation programme, grant agreement No. 101156595.

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