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Towards a Concrete Improvement in the Quality of Life of Patients with Autoimmune Myasthenia

Published by FONDATION MALADIES RARES

Autoimmune Myasthenia

The Fondation Maladies Rares and UCB have joined forces to offer a €30, 000 research grant to a humanities and social sciences (HSS) research project focused on findingconcrete, short-term ways ofimproving the life course of patients suffering from generalized autoimmune myasthenia gravis.

The grant will be awarded to a research project focusing on the individual, family and/or social consequences specifically linked to generalized autoimmune myasthenia gravis, in order to gain a better understanding of the impact of this disease, and in particular muscular fatigability, on quality of life at the level of the individual, couple or family, for example.

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GenOmics 2024

Published by FONDATION MALADIES RARES

Genomics

The Fondation Maladies Rares is pleased to announce the launch of its “GenOmics” 2024 call for projects.

The aim of this AAP is to support hypothesis-driven research projects aimed at exploring the genetic and molecular basis of rare diseases using NGS approaches (WES, WGS, RNA-seq, small RNA-seq, ChIP-seq, Methyl-seq, etc.).

Support from the Fondation Maladies Rares will give project leaders access to innovative high-throughput sequencing technologies for the analysis of exomes, genomes, transcriptomes or epigenomes.

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Rare As One (Cycle 3)

Published by Chan Zuckerberg Initiative

Chan Zuckerberg

The Chan Zuckerberg Initiative invites applications for five-year projects from patient-led rare disease advocacy organizations to join the Rare As One Network. Grantee organizations will accelerate research within individual disease areas and work across specified areas of scientific focus (channelopathies; ciliopathies; or inborn errors of metabolism) to develop shared research priorities and proposals.

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Wellcome Discovery Awards

Published by Welcome

AwardGrant

This scheme provides funding for established researchers and teams from any discipline who want to pursue bold and creative research ideas to deliver significant shifts in understanding that could improve human life, health and wellbeing.

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Oxford Invention Fund (OIF)

Published by Oxford

University of Oxford

OIF will invest in early stage technology projects in order to make a return which is funnelled back into this self-sustaining “evergreen” fund. The OIF is endowed by charitable donors to the University as part of the Oxford Thinking campaign. It supports early-stage, proof-of-concept activity.

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