Statistical recommendations for count, binary, and ordinal data in rare disease cross-over trials

Published by Springer

Clinical Trial Design Research and Drug Development

Peer reviewed journal article on statistical recommendations for longitudinal cross-over studies in rare disease research

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Innovative Therapies and Personalised Medicine for Rare Diseases

Published by EJP RD

Cell Therapy Course Gene Therapy Regenerative Medicine Tissue Engineering

A course to learn how recent advances in medicine research, such as : gene therapy, protein-based treatments, regenerative medicine, cell therapy and tissue engineering and more in general, personalized approaches, are transforming the treatment of rare diseases.

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Learning video project overview

Published by EBStatMax team

Clinical Trial Design Research and Drug Development

Learning Video on the EBStatMax Project Overview

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Health Data Ethics & Regulatory Frameworks in Rare Disease Research

Published by Futurelearn.com

Course Ethics Health Data Regulatory Science

A course to discover the role of health data in rare disease research, exploring the ethics and regulatory frameworks governing data use.

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Learning video statistical recommendations

Published by EBStatMax team

Clinical Trial Design Research and Drug Development

Learning Video on the EBStatMax statistical recommendations

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Diagnosing Rare Diseases: from the Clinic to Research and back

Published by Futurelearn.com

Course Data management Rare Diseases Diagnosis

a course to discover the role of research, clinical investigation and data sharing in diagnosing rare diseases. which explores the advancements made through diagnostic research, the types of genetic tests available for rare diseases and the impact of having or not having a diagnosis on patients’ lives.

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Learning video educational materials

Published by EBStatMax team

Clinical Trial Design Research and Drug Development

Learning Video on educational materials

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From Lab to Clinic: Translational Research for Rare Diseases

Published by Futurelearn.com

Course Research and Drug Development Translational Research

A course to gain an overview of the issues, challenges, and opportunities in translating research into medical treatments and therapies for rare disease patients.

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Learning video Rare Disease Analyser

Published by EBStatMax team

Clinical Trial Design Research and Drug Development

Learning Video on the Rare Disease Analyser

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Rare Disease Analyser

Published by Konstantin Emil Thiel (EBStatMax)

Clinical Trial Design Research and Drug Development

Source code of the Rare Disease Analyser, the webapp that implements statistical methods for rare diseases

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The Innovation Management Toolbox was originally developed through funding from the EJP RD project, which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575. The continued development and maintenance of the Toolbox are now supported by the ERDERA partnership, funded under the European Union’s Horizon Europe Research & Innovation programme, grant agreement No. 101156595.

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