Health Data Ethics & Regulatory Frameworks in Rare Disease Research

Course Ethics Health Data Regulatory Science

A course to discover the role of health data in rare disease research, exploring the ethics and regulatory frameworks governing data use.

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The Innovation Management Toolbox was originally developed through funding from the EJP RD project, which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575. The continued development and maintenance of the Toolbox are now supported by the ERDERA partnership, funded under the European Union’s Horizon Europe Research & Innovation programme, grant agreement No. 101156595.

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Health Data Ethics & Regulatory Frameworks in Rare Disease Research